I came across this About.com article about how to keep fibro muscles loose, which can be a challenge. Just thought I'd share it here for you all to read and comment about it.
http://chronicfatigue.about.com/b/2011/12/02/loosening-up-your-muscles-with-fibromyalgia.htm
I've been very stiff lately, and have been having lots of symptoms all at once. I will need to see if I can vary my routine a bit to make a difference.
You might want to take a look here ( http://www.canlyme.com/fibrocfslyme.html ). The Canadians are doing studies that may prove that Fibromyalgia could actually be Lyme Disease in one of its many disguises, and may benefit from treatment.
ReplyDeleteI have a friend who told me that, before we even met, she was diagnosed with Fibromyalgia, wouldn't accept that as an answer, pursued other answers, met a South American doctor of the same mind as these Canadians in your study, and he "cured" her by treating her for Lyme disease. It was a very long and arduous battle. In fact, I remember her specifically saying that she "felt like ass" for at least a year, while being treated for this bacterial infection. However, she's now all finished with being chronically ill and has been urging me to seek another diagnosis, even if it doesn't turn out to be Lyme.
ReplyDeleteI pursued other answers for a while, but I feel beaten down by the limitations of my medical knowledge and connections. The friend I mentioned here is a veterinarian, so she has plenty of medical understanding and is much more sure of her decisions to pursue non-typical treatments. I, however, do not work in the medical field at all. Although my chronic conditions have taught me much about how my own body works (or doesn't work), I remain a non-medical, lay-person - merely a patient in the system. It's an expensive system, too. I live in the USA, where the health industry pretty much has us chronically ill folks over a barrel. We pay for coverage, we pay for co-pays for doctor visits, drugs, and tests. We follow our doctors' orders and keep paying. It's difficult to know what's best for us, even when our doctors are truly doing what they think is right, since we frequently see no new results on tests or have many failed or semi-successful treatment trials along the way.
So, basically, your post has me torn. I would love for the truth to turn out to be that FMS is really Lyme and is curable! However, pursuing that on a personal basis is exhausting on many levels. I simply don't have access to the people or even questions I need to go about doing it myself, like my friend did. However, this study may offer some hope of at least finding out if there is any correlation between these two conditions, if it can be cured, and if it's worth pursuing.
Sorry for the really long reply, Hugo, but thank you for prompting me to think again about this. I am interested in this study and look forward to their findings and the findings of (hopefully) other similar studies. With answers to this question, I can, at worst, put the hypothesis to rest, and at best, get myself through the cure regiment and return to my old self.
Thank you!