Monday, May 31, 2010

Fibroletters, Fibromyalgia Letter Writing Campaign

I have recently discovered a great cause that helps to demonstrate how Fibromyalgia (FMS) affects people.  The name of the idea is Fibroletters, Fibromyalgia Letter Writing Campaign.  It was started by several patients with Fibromyalgia (among other conditions) to help the public understand of the reality of Fibromyalgia.  

Per the Facebook page, here is a description of the purpose of this campaign.
This is not an FMS awareness campaign, but more of an FMS humane campaign.

The purpose of the group is to get at least 500 letters from those that suffer FMS, their families, friends, neighbors, co workers and anyone that can say how it not only affects the sufferer, but those around them.

Once we reach 500 letters they will all be mailed to the media AT ONE TIME. We are hoping that if its sent this way, it will be the same as if we were there. Each letter representing a person. Each person telling a story. Each story affecting another.

Please join us in sending a letter snail mail or email.  (More info is on the web page.)
Whether you are a patient, friend, relative, coworker, or just know someone with Fibromyalgia, you will very likely have a perspective on how this health condition has affected you.  Most readers of this blog (if not all) know someone who has Fibromyalgia.  Many of you know me, and if you know me, you know someone with Fibromyalgia. 

I have already written and submitted my letter via email.  Will you please take a few moments to write a few words about how Fibromyalgia has affected your life and send it in as well?  There is no cost, other than time, and your words will have an impact on this campaign.  Your letter can help make a difference.  

Please write a letter and send it in.  Share this campaign with others you know.  Join the Facebook pageVisit the website.  Share the link with your friends and invite them to join.  Post the call for letters in your blog or networks.  Email about it.  Talk about it.  Tweet about it.  Get the word out any way you can so they can reach their goal of 500 letters.

Our healing begins with understanding and the best way to help others understand is to write a personal letter.

Thank you!