Wednesday, October 21, 2015

A Long, Long Year, and a Poem

It's been a long, and difficult spring and summer for my husband and me. He has Crohn's, as many of you know, and it has turned his life upside down, starting with an intestinal obstruction with micro-perforation that occurred in mid-March, and resulted in an emergency ileostomy that was supposed to be reversed after 3 months. Since then, it's been one complication after another. He is still dealing with the problems we never knew about until all this happened.

However, as he nears his reconnection surgery date, we have been trying to get his weight and strength back up, and one of the things we have been doing is walking every day. Those walks inspired this poem. I hope you enjoy it.

The Same Old Path by Benia Zouras

Friday, October 2, 2015

Monarch Butterflies and a Bunny

Summer's last gasp brought monarch butterflies to our yard only a few days back. Here, I attempted to get some footage of several of them feeding on our New England Asters, and got an unexpected bonus bunny as well.

The winds of Autumn are blowing hard outside now, but at least this video captures some relaxing quiet time. Enjoy.

Wednesday, February 11, 2015

Another Diagnosis

I saw my rheumatologist today. She confirmed that my finger bump is very likely the beginning of arthritis, and, unfortunately, there is no treatment to prevent or slow down the development.

I also went to visit my parents after the appointment, since they live near my doctor's office. My dad has arthritis, further supporting the likelihood that I will suffer the same fate. I looked at his hands. His finger joints have prominent double bumps on them, and he has trouble bending them. It's at least a slow condition to develop. 

I am hoping that if I continue to use and exercise my index finger - instead of adapting by using other fingers - that I can retain joint flexibility longer and maybe prevent the bony growth from obstructing mobility a bit longer. This is all speculation on my part. The doctor talked about a topical treatment to reduce inflammation. I still have plenty of Zostrix with capsaicin that I can use if it gets "angry".

I completely forgot to mention the eye twitch (Myokymia) today, but it's almost becoming a normal part of life now, it's been so many months now.

I am also going to try to wean off the one prescription medication that I take for FMS/CMP: Cyclobenzaprine. She suggested halving the dose for a few months and watching out for worsening pain or sleep, then halving again and watching out again, before finally stopping it. I'm going to see if I can do it, since the dry eyes and dry mouth are starting to really bug me lately, and it may also be aggravating my atrial tachycardia (heart palpitations). I notice the episodes tend to occur right when I wake up.

I'm proud to report that my doctor said she wishes all of her patients were like me. I'm glad I'm managing this all somehow.